A Beautiful & Brave Young Girl raising awareness about Cystic Fibrosis

February 09, 2015  •  1 Comment

My young friend, Lillian Bartholomew Royer was diagnosed with Cystic Fibrosis just before her first birthday. She is now a beautiful and vivacious fourteen year old. For those that don't know, here are a few facts about CF: The average age of survival for those suffering from CF is 38 years of age. CF is an inherited disease which affects every organ in the body. Lungs and digestion are the hardest hit. Lily battles the effects of this insidious disease every day. Each day is a fight for breath and life.

Lily is lucky enough to be a part of a family with four children that live near their grandmother on a ranch in Woody Creek, CO.  Together with her intelligent, gentle and warm-hearted mom, Elana, Lily has started a new endeavor called Lilybart.  It is the family's intent to find a creative process and an opportunity for Lily to engage in the healing powers of creating art and to share her story with pencil, paint and paper. Through the unfolding of Lilybart they hope to allow Lily and children with CF to feel inspired and to know that dreams and aspirations can blossom and take flight.

Lilybart is the seed from which they hope to affect change in the lives of children and young adults suffering with this disease. It is the vehicle with which artists and children can collaborate to bring to fruition a work of art. It allows Lily to work with local artists in different mediums. From this art, greeting cards are made and sold at local boutiques and at lilybart.com.

In Elana's words, "Lilybart is a celebration, an affirmation for the importance of the moment and an acknowledgment of potential. The inspiration for Lilybart is a precocious, high-spirited and beautiful bundle of energy. Lily’s sparkle and cheer is the face to our endeavor… a vivacious, shining light."

 


Comments

1.Elana Royer(non-registered)
With skill, warmth, wit and creativity, Michele captured the essence of Lily.
Not just the sweet, lovely girl that Lily presents with ease, but something so much more.
Michele set the tone to elicit many layers of sentiments from one who is and has been very
much in control from a very young age.

Witnessing Michele and Lily together was cathartic for me, the mother. I saw Lily
in all of her entirety.
From poised and serene to pensive, wistful, joyful and care-free.
This journey of ours has brought us to Michele for so many reasons
and on many levels.
Michele doesn't just take a picture, she creates memories through her heart
and makes connections with her incredible deeds.
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